Failing patience, fading empathy

I find myself getting impatient with my elderly mother more quickly and more frequently than I used to. She has always been an extreme worrier, engaging in catastrophizing and panic, always assuming the worst, sometimes imagining well beyond the worst-case scenario fearing things that there’s basically no chance will be the outcome of the situation. It started getting considerably worse in the fall of 2022 and continues to be so. It may be a side effect of a medication or her age exacerbating things, but the increase of problems started about the time my dad’s fight with cancer started taking more of a toll. He was gone six months later.

My mom and dad were married 56 years and when you include dating and engagement, were together for just about 60 years. I understand that her anchor was gone and she felt more vulnerable. I did a lot of things to help her with everyday personal business like making calls with her to Social Security, insurance companies, then renewing said insurance, and transferring the van and getting a new handicapped plate, checking her math when balancing the checkbook. All things she knows how to do but hadn’t been doing them for a number of years.

I also made improvements to her physical environment. I had replaced a bookshelf a year or so earlier and still had the old one, so I took it to her and made room for it, put it in place and moved the books and other items to it. I also gave her a little corner shelf that I hadn’t been using for a while and helped get that in place and found a little side table that would work next to her couch better than what was there already. I didn’t even realize it, but the table had been my dad’s before they met, so she really appreciated having that.

It seemed like things were improving, and indeed I think she was coping well for a number of months of the first year without my dad, but then she started to say she felt “blue” more often when I asked how she was. It felt like my efforts were all in vain. Like no matter how much I did, it wasn’t enough and she just kept doing worse. She wasn’t oblivious to this decline in mood and in fact, talked to the nurse practitioner at her primary care and they tried her on an antidepressant for a while but that only seemed to make her worse and it was stopped.

After a while, it seemed like her mood leveled off to some degree, enough to cope and find enjoyment in things, but the worrying and panic got worse. It’s very draining to have several calls a week from your mother, who was so strong and wise when she was raising you, in a state of panic because she got some strange call or text on her phone. Like a scammer can somehow ruin your life even if you don’t respond to them.

I tell her to think about what would be the worst that could happen and it’s not going to be as bad as her initial fear-filled reaction has her thinking. And even if the worst happened, she’d get through it. I guess she doesn’t see it as a choice, how you react to something. It’s been an automatic response for so long that she must feel like she can’t control it and that it’s something that just happens, not of her own volition. Maybe that’s true to some degree because it’s hard to retrain your brain when you’re in your 80’s. But I think there’s always room for improvement if the effort is made.

What’s funny is that I used to be so patient that I’ve had people tell me that I have the patience of a saint. In fact, there was more than one occasion when I worked in retail that the next person in line would say so after I finished with a difficult customer. But in the last 6 or 7 years, the harassment that I’ve mentioned in other posts, has eaten up any patience, tolerance, or forgiveness, and even empathy that I had in me. I could easily do a whole post just on that point, but this one is about trying to be there for my mom.

I think the solution is to talk about things on a regular basis and specifically about managing fear and anxiety, to plan for the moments that spark intense worry and be ready for it; to have coping strategies and specific actions to take. Calming imagery or memories, music, inspiring quotes, and mindfulness. I don’t think that’s a concept that anyone ever taught her, but it’d be very helpful to stop and think, observe and then proceed with caution.

It’s always better to get out in front of an issue than to wait till something happens that’s harder to deal with. Of course, that’s easier said than done. But most things worth doing are. I know that my mom is a strong and intelligent person and that God has given me a good heart, patience and kindness. I’ll just have to keep any situational irritability out of the equation and be true to myself and see the strength and ability in her that has always been there. You’ve got to stick together with family and help one another in love. Same goes for friends.

The contribution

As we pulled out, I waved to my family. My aunt commented that my mom was really crying, and she seemed surprised that it was that hard for her to see me go for two weeks. I hadn’t been away from home for more than a night before that.

I was going to stay with relatives for two weeks and come back to our family reunion with them. It was the summer between 6th and 7th grades. We didn’t have middle school then, so the coming year was the first of junior high. I had kind of been manic in the latter half of the school year, though it would be years before I knew that’s what it was. It was kind of good in that it broke me out of my shell. I was always very shy and quiet. Unfortunately, that returned by fall and lasted for a few more years.

So, we were off, amidst the tears. I realized years later that my mom was crying because she felt so bad about my brother not getting to go too. My aunt had called my mom and made the suggestion.  I guess there wouldn’t have been enough room in their car for everyone on the way back with luggage and all, so only I was going.

It begs the question, why extend the invitation at all if it was only going to be for one? Then I thought maybe my mom should have declined the invitation. I guess she didn’t want us both to miss out. My brother and I were just 14 months apart in age, he the older one, and we did everything together.

My brother was gracious about letting me go. While he was close to our cuz too, he knew that I always had a special bond with him. I’m sure he still felt left out, though. We didn’t get to do a lot of things, or go places, because we didn’t have the money and my parents didn’t get much vacation. I don’t know if they had any paid vacation. My mom was working at a blouse mill and my dad worked at a hardware store.

Once at my cousin’s house, I had a really nice time. It was early in the summer, and the weather was great.  As I said, my cousin and I had a special bond. We only saw each other once a year, but we always picked right up where we left off. They lived in a city, and we went to museums and other fun things.

We also ate out two or three times. Near the end of the trip, my aunt asked me for money for those times we ate out and they had paid for everyone, including me. I was surprised that she was asking for it, but being only 11, I didn’t protest. The problem was, that I had only $13 at the start of the trip, some of which I had spent on a puddle jumper at the Children’s Museum.

My aunt’s response to that information was, “You mean your mother sent you out here with only thirteen dollars?”  Instead of feeling angry at her, I was embarrassed and ashamed. I felt inadequate. I was aware that my family was poorer than most everyone else I knew, but this was kind of a painful reminder. And, she still took the my money. I had wanted to get my brother a souvenir of some kind. My aunt said I could pick something out of a box of items she picked up here and there for our annual Christmas gift exchange via mail.

I selected a fancy plastic ruler with “wood” grain through the middle. I’ll never forget the disappointed look on my brother’s face when I presented it to him.

Well, that was more than three decades ago. (Is that possible?) I must admit I still feel resentment when I think of that incident, but I have forgiven it. I remind myself of her good qualities, which I’ll share with you now. She was fun to be around and had an infectious laugh.

My uncle worked for the post office and he used to joke that she gave him job security, because she sent cards to everyone for birthdays and anniversaries and such. She was very good about that. She kept track of everything. She worked hard selling Tupperware to help support the family. She actually won a sales contest not long before my visit. The prize was the station wagon we rode in.

She also had diabetes for as long as I could remember. She was on dialysis for the last ten years of her life, until heart complications took her too soon. I think she was 72, so she made it pretty long, considering. We all still miss her.

Mental health update, 7/30/18

I’ve had technical issues and other distractions, but I wanted to give another update on my sister.

She came home after about a week.  As predicted, the insurance company decided to send her home early, against the doctor’s recommendation and the social worker’s protestations. There was not even enough time to bring medication changes to the full dosage. Fortunately, she was well enough this time to stay stable in the meantime. She continues to do well. I just had a nice talk with her.  We’re both trying to lose weight and we trade successes and challenges on that front, among other things.

We can also talk about mental health issues, since I have bipolar depression and anxiety myself. I have pretty good insight into what she goes through.  I like to think I offer some help in coping from what I’ve learned.  And, I’d like to share more about that in coming posts.

I’m relieved she’s doing well, but I still worry about the coming years. There’s the financial issue, and the social. It’s hard to meet and keep friends when you have a serious mental illness. It’s even harder to meet a significant other.

I have to admit that she drives me nuts sometimes when she chatters incessantly. She also tends to turn the conversation back to herself a lot. I hope that I can help her to see that, and maybe learn to listen more. It’s not totally her fault. Her mind races and it’s hard to keep it all in.

It’s a hard knock life.